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7/17/2008 RealityJust reflecting on a conversation I had with a new friend that I can't get off my mind.... As I was walking with a new friend of mine I came to the realization that not everyone realizes just what we have been through with our CDH journey. It is a great feeling to see that we look so normal in other people's eyes. Chris, Kylie and I were taking a walk Monday night and we met our neighbors walking as well. Kylie and the other two children began running, playing and just being kids. Chris noticed Kylie getting a bit winded and walked to her and told her to calm down and take a break. Her face was red and sweaty and she was breathing heavier than normal, not a big deal to most kids. Kylie slowed very little and took a breather and we all began walking back home. Chris kept on looking back at Kylie and making sure she was ok, probably just looking a little overprotective. So the next night the neighbor and I were walking and just talking to pass time during our walk and we were talking about Kylie's slow growth and just how little she really is compared to other 4 1/2 year olds. The lady says to me "oh was she full term or early". I proceeded to say she was 36 weeks but that was of course not the problem. I said "oh you mean you don't know about Kylie" and she said no. So I told her the story in very short form and she said "now that explains why Chris is so protective of her when we are around....I told my husband he needs to let her go she is 4 1/2 (refering to the incident Monday night)". After all was explained she just couldn't believe what she had gone through and sure understood Chris after that evening. Anyway, I just reflect back and think she is so fortunate to have made it. I reflect back to other babies with CDH that are not so fortunate and it breaks my heart. We still worry about the unknown for Kylie as every parent does. I worry deeply about her slow growth and am always trying to feed her a little more. I am sure I look silly at times trying to hand feed my 4 1/2 year old but it is what she needs and has to have sometime. I worry about her starting Kinder in a year and will she be ready. Her fine motor skills lack and she gets OT twice a week for this. Sometimes I hope her therapist is doing everything she can do for her and do I need to look for another one. It is hard and my mind worries alot still but in reality we are "normal" and I am so fortunate. We love Kylie so much and just pray for her growth and strength as time goes on.
Sorry for not blogging in so long.....our summer has been wonderful. I am off in the summers and get to spend lots of time with little Kylie. I recently received a promotion at work and will be doing something a little different. It is exciting and scary all at the same time. Kylie is taking swimming lessons and of course doing gymnastics. She is ready to go back to her preschool to see her "friends". We have had a great summer and will post pictures of our trip to Galveston. We also just got back from a family reunion and that was fun. Take care and I will update sooner than later this time. Thanks for checking in-
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