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7/6/2006 Long time....It has been such a long time since I have posted. I spend the time that I have on the computer reading all of the other posts from all of the other CDH families. GREAT NEWS.....Audrey is home!! I am so happy for the Miller family. I hope one day Kylie is able to meet Audrey since we live so close to one another.
My father's birthday was Sunday and July 2nd marked the second year that Kylie has been home with us. Kylie came home for the first time on my father's birthday. My dad turned 60 this year but doesn't seem much older than he ever has been. I have an amazing father who spent so much time with Kylie while she was in the hospital. He would go see her every single morning after he got off of work while I was able to go back to work and get away from the hospital a little bit. He just doesn't know how helpful that was for my mind during that time. I watch him with Kylie and just think he is so special to her. He is a wonderful man and I always knew that but know it even more watching him with Kylie and seeing how amazing he was to me when I was pregnant. He is just such a nice man and great dad!!
Well, Kylie, my parents and myself went to spend some time with my aunt and uncle in Houston about two weeks ago. We had such a great time and spent it cooking out, jet skiing and riding on their boat. We got to see fireworks on the water on Galveston bay. It was absolutely beautiful and to this day Kylie will say "fireworks/boat". We also took Kylie to Galveston beach and she had a great time and loved the water. Most of all she loved chasing the seagulls around. I think she really thought she could catch them. She had a ball. One cute story is when a lady and her daughter were feeding seagulls bread and she gave Kylie a piece and Kylie immediately took a bite of bread for herself. She is just so stinking cute. I love her to death. I will post what pictures I was able to get...On that note: I hate digital cameras..mine always captures the moment about three seconds later and then it seems to always be out of batteries. Anyway, Kylie also got to ride on the jet ski (don't worry just in front of their house in the cove). She loved it and was still as a mouse. It is unusual for Kylie to be still you know. Kylie ate like a horse while she was there. Kylie still has such a hard time gaining weight. She weighs in at 21.6 lbs. and just can't seem to get past that weight. I think most CDH babies have a hard time gaining weight. We have been to the endicrinologist and all kinds of testing done in that respect. I am glad she is a girl and she will so appreciate being tiny as she gets older. It just gets kind of old hearing all the time from the doctors about her weight. You know it just kind of makes you worry. Like we haven't worried enough about everything with her!!! She is just amazing and to me has beat the odds. I think she is going to be something very special in her lifetime. She already is to us of course!!!!! I am just typing this waiting for her to wake up to another fun filled day today. She is just the happiest little thing that you could imagine. I just watch her eyes thinking at all times.
We had a great 4th of July. We just hung out at the house with Kylie's nana (who she adores to no end), my grandparents, and cousins. Kylie really enjoys having everyone around. She has a great bond with my grandparents and it is so nice that she has gotten to know them so well. I appreciate their kindness to my Kylie. It did end up raining so we didn't get to go swimming as I had promised her. We were not going to go watch fireworks and then all of the sudden we all got our second wind and went to watch them. She was just excited to jump around in the car and be in the front seat bouncing around, yelling out the window and looking out of the moon roof. She was feeling like she was very big. She would yell out the window "chocolate shake" and then hurry back in the seat to put her seat belt on across her chest. I just thought to myself that must be how I look because she is obviously copying what she has seen. Kylie loves chocolate shakes and she gets one often for the calories and they say that is the best therapy for her oral motor issues. Anyway, I guess I have said enough and will get ready for another day with Kylie Rae!!!!! Thanks for checking in with us and have a wonderful day!!!! Please say special prayer for families of CDH children. |
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