| Chris, Julie an... 的个人资料Dudley Family照片日志列表 |  工具  帮助 |
|
2008/12/20 Once again.....Kylie and I have been sick off and on for about two weeks and this past Monday I felt we were all ok but...Wednesday night Kylie started with a cough and it progressively worsened after that. Friday morning she was just coughing non stop with a dry cough. They say dry coughs are worse because it means nothing is breaking up. I of course tried very hard to get Kylie into see her pulmonologist that day but could not get an appointment so we had to go with a pediatrician in the group. I really thought Kylie was just having some allergies and drainage causing the cough but, I was wrong. Her SPO2 was 93% which is low for Kylie. They began doing a breathing treatment and said she sounded "crackly". After the breathing treatment they would see if her SPO2 came up. I figured we were on our way to the hospital after her O2 was low because she was not seeing the pedi. that knows we can and have taken care of Kylie at much worse conditions. The nurse came back in to check her saturations and it was 96% so they sent us home with breathing treatments every four hours and an antibiotic for double ear infections. Kylie has been so well for so long it just reminds me that at times she is still fragile and something small for some kids can turn into alot for CDH kiddos. I am reminded of how lucky we are during these holiday seasons to have our sweet little Kylie. We have also made a decision to go ahead with growth hormone shots for Kylie. We should begin those within the next couple of months. They have decided to conduct a repeat MRI to take a look at her brain to see if there is anything that could have happened to any part of it when she was critical. I think the main concern would be upon her transport to the hospital in which she had to be transferred for ECMO. Her saturations dropped in the 40's for some time. Kylie is our miracle and we will do what we need to do for her success. She will have six shots per week for years. I am excited to see the growth. Take care and have a wonderful holiday season!! Kylie is anxiously awaiting Santa this year....she cannot stay out of the presents under the tree. Needless, to say we don't have any presents under the tree right now :)!! By the way for those that know about Chris' recent job loss, he received an offer last Friday for a new job......we are blessed in all kinds of ways!! Thanks for checking in!!
Julie |
|
|
