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1/1/2007 VentingFirst of all, I hope everyone had a very Merry Christmas and a Happy New Year!! I know we have all been counting our blessings in this house for such a special miracle Kylie. She had a wonderful Christmas and was so into Santa this year. We thouroughly enjoyed our time with her. Chris is back to work tomorrow and has been a little sad today. Fortunately, I have another week off...YEAH! I guess I will do some house cleaning and just have some more fun with Kylie.
Ok, so I don't usually use this to vent but today I am going to. I think it is really hard for some people to understand what Kylie (and many other sick children) has been through in her short life and I am a bit of an advocate, as I am supposed to be, for her. I would not call myself totally over protective, but in some people's eyes I guess I am. There was a little situation today that happened and left me feeling like crap. I won't go in to all of the details but, basically I will ask if a child that is coming to play with Kylie is feeling better or is sick if I know for a fact that they have been sick. Today, the response was are you worried about Kylie catching something?? and I said as a matter of fact, yes I am. I said I hate being like this it is just that for Kylie I would just rather not take a chance especially when it is respiratory. I was told what was not contagious and then was asked about when Kylie was going to start preschool. I know exactly what the person was getting at with that question. Yes, Kylie will start preschool when we all (doctors and family) think she is good and ready and I know she will pick up little germs from school and do realize that she is going to get sick. I do think as many of her doctors have told me that the more time she has to heal right now the better off that lungs will be. I reminded the person that Kylie gets lots of socialization with different activities and such during the week. I guess I just always have in the back of my mind the doctors specifically telling me if you can help it please wait on school or daycare until she gets stronger and older. The more we can keep her well the better. Right now, Kylie just plays like any other child and really looks so normal that you would not even know what she has been through, but it is always in the back of my mind and I will be her advocate. So, I leave this post feeling a little better and know that some people will know exactly what I am talking about and others will just think quit complaining.....anyway have a great evening. |
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